It's infuriating when I say "I am having a flare up" to my Dr. or family members, they just look at me with a blank look. Flare up ='s tremors, my legs aren't working right, joint pain, muscle weakness, I can't feel my feet, heart racing while resting, high blood pressure. F-this....... Moderna, the F-ing worst decision I've ever made in my life.
Not being seen, heard or believed when you are suffering from an invisible illness is extremely hard. I hate this for you. You are not alone. I hope you are finding things that work to help you during those times. And, I hope for you that you are finding your people who sit with you when your legs aren't working, rub your feet when you can't feel them and find you a chair when your heart is racing. Sending you hugs, healing, hope and humanity.
Honestly mostly I keep it to myself. When I tell those close to me how I am feeling I get nothing anymore. They are all over it because they can't even wrap their heads around what has happened to me. My injury cost me more than my health. It strained many of my relationships. I have people like you and the other support groups that have been created by all the others that suffer these injuries. I have found some natural ways to help myself. It's all I can do. I pray you find support and healing as well.
It is very socially isolatingon addition to the physical issues and also the financial strain. I hope you have found people near you. It helps so much to be in community with other injured people in person.
Steph deGaray lives close to me and a couple others but i have yet to meet any of them. I've reached out but they are so busy trying to find help that it hasn't happened. I am envious of the closeness and activeness of others but not in a bad way. i find strength in following everyone on social media. But I would love to be more active in trying to get us help.
Online connections with those people who get you are important lifelines. It does help to meet in person. Share your story with strangers when you are comfortable and you will meet someone who needs you as much as you need them. 💜
Suzanna, thank you for sharing your story. And I am so sorry your body is fighting you. I want you to know that I pray everyday that you will continue to heal. I’m so happy that you will get to walk the finish line.
Participating in the triathlon in honor of you and the other vaccine injured Minnesotans last year was one of the most awe inspiring experiences of my life. Crossing the finish line with Joanna was very emotional for me. She was cheering me on just as much as I was cheering her on and advocating for her and others. Team Humanity is truly a team. 🥰
I am so thankful for your prayers, support, love, connections, generosity and inspiration. You have been through so many physical challenges yourself and you have found a way. We each are finding our own way as well as part of a Team. A beautiful team full of beautiful people united in caring. Thank you for carrying to torch over and over when I have been unable. It would have fizzled out without you and Lorri. I cannot put into words how thankful I am.
As Chris said, it is a humble honor to bike in your place.
Your inspiration has created many new triathletes and we would have never done it for ourselves - we did it for you. We did it for every one of you suffering and isolated. We want to bring this issue into the public eye so we can start having real conversations on how to heal.
I am thankful for Chris and so thankful for the Team. I know the team understands and is showing up with such big and beautiful love each stroke, each pedal and each step of the race. We are so much stronger together and like I said in the comment to Lindsay, I could not have kept Team Humanity going without you both and the beautiful growth in love is incredible. Thank you for helping me build a community built on supportive love in the purple!
Thank you for all you do for humanity, within and welcoming those outside of the injured and injury aware community. Despite and throughout your own healing journey, you remain a consistent blessing and inspiration to many. 💜💪
Sweet friend, you too are also a blessing and inspiration. I am so sorry we had to meet this way. I wish you could have been only a supporter and not injured yourself. Your kindness and generosity shows up over and over. I am thankful to know you.
Oh Suzanna I am so with you! I've lived with flare-ups for 50 years and didn't know they were flare-ups until 2 years ago. I just spent my life chasing what I did wrong and even though I know about them, I still keep chasing just in case it is something I did. At least I have learned about having a near perfect diet and how important exercise is. I look healthy, but I don't feel it and I know it will never change. I just started on CBD oil and so far, not much has changed. I'll keep trying though, it's a lifelong habit. We may not be alone but I don't know anyone else who lives like this. You actually made my morning with your words because now I don't feel so weird, honestly, I actually feel better than when I just got up with my multiple pains and weaknesses.
It is extremely hard to live like this. And you likely look better than you have ever looked because your diet is near perfect and you are doing what exercise you can. So we look to the outside world like we must have only an emotional struggle happening. That is not it at all. Of course, emotional and physical wellbeing is so tied together. Feeling seen, heard and supported when your injuries and pains are not visible does help. You are not weird at all and don't give up hope. I love Dr. Kim D'Eramo's Mind Body suggestions. She has a book online for $15 and lots of free videos on YouTube.
So eloquently written. You verbalize to everything that I feel but lack the vocabulary to state. I have been in a huge flare feel like time has gone backwards for me… This is totally resonates are used to be a half marathon/marathon runner. We are written off as collateral damage.
I am so sorry you are also struggling. Having your physical abilities taken away overnight after being so active is extremely hard. It's scary too, because you don't know if you will ever get it back. Sending you hugs, healing, hope and humanity. 💜
It's infuriating when I say "I am having a flare up" to my Dr. or family members, they just look at me with a blank look. Flare up ='s tremors, my legs aren't working right, joint pain, muscle weakness, I can't feel my feet, heart racing while resting, high blood pressure. F-this....... Moderna, the F-ing worst decision I've ever made in my life.
Not being seen, heard or believed when you are suffering from an invisible illness is extremely hard. I hate this for you. You are not alone. I hope you are finding things that work to help you during those times. And, I hope for you that you are finding your people who sit with you when your legs aren't working, rub your feet when you can't feel them and find you a chair when your heart is racing. Sending you hugs, healing, hope and humanity.
Honestly mostly I keep it to myself. When I tell those close to me how I am feeling I get nothing anymore. They are all over it because they can't even wrap their heads around what has happened to me. My injury cost me more than my health. It strained many of my relationships. I have people like you and the other support groups that have been created by all the others that suffer these injuries. I have found some natural ways to help myself. It's all I can do. I pray you find support and healing as well.
It is very socially isolatingon addition to the physical issues and also the financial strain. I hope you have found people near you. It helps so much to be in community with other injured people in person.
Steph deGaray lives close to me and a couple others but i have yet to meet any of them. I've reached out but they are so busy trying to find help that it hasn't happened. I am envious of the closeness and activeness of others but not in a bad way. i find strength in following everyone on social media. But I would love to be more active in trying to get us help.
Online connections with those people who get you are important lifelines. It does help to meet in person. Share your story with strangers when you are comfortable and you will meet someone who needs you as much as you need them. 💜
Suzanna, thank you for sharing your story. And I am so sorry your body is fighting you. I want you to know that I pray everyday that you will continue to heal. I’m so happy that you will get to walk the finish line.
Participating in the triathlon in honor of you and the other vaccine injured Minnesotans last year was one of the most awe inspiring experiences of my life. Crossing the finish line with Joanna was very emotional for me. She was cheering me on just as much as I was cheering her on and advocating for her and others. Team Humanity is truly a team. 🥰
I am so thankful for your prayers, support, love, connections, generosity and inspiration. You have been through so many physical challenges yourself and you have found a way. We each are finding our own way as well as part of a Team. A beautiful team full of beautiful people united in caring. Thank you for carrying to torch over and over when I have been unable. It would have fizzled out without you and Lorri. I cannot put into words how thankful I am.
As Chris said, it is a humble honor to bike in your place.
Your inspiration has created many new triathletes and we would have never done it for ourselves - we did it for you. We did it for every one of you suffering and isolated. We want to bring this issue into the public eye so we can start having real conversations on how to heal.
I am thankful for Chris and so thankful for the Team. I know the team understands and is showing up with such big and beautiful love each stroke, each pedal and each step of the race. We are so much stronger together and like I said in the comment to Lindsay, I could not have kept Team Humanity going without you both and the beautiful growth in love is incredible. Thank you for helping me build a community built on supportive love in the purple!
Thank you for all you do for humanity, within and welcoming those outside of the injured and injury aware community. Despite and throughout your own healing journey, you remain a consistent blessing and inspiration to many. 💜💪
Sweet friend, you too are also a blessing and inspiration. I am so sorry we had to meet this way. I wish you could have been only a supporter and not injured yourself. Your kindness and generosity shows up over and over. I am thankful to know you.
Oh Suzanna I am so with you! I've lived with flare-ups for 50 years and didn't know they were flare-ups until 2 years ago. I just spent my life chasing what I did wrong and even though I know about them, I still keep chasing just in case it is something I did. At least I have learned about having a near perfect diet and how important exercise is. I look healthy, but I don't feel it and I know it will never change. I just started on CBD oil and so far, not much has changed. I'll keep trying though, it's a lifelong habit. We may not be alone but I don't know anyone else who lives like this. You actually made my morning with your words because now I don't feel so weird, honestly, I actually feel better than when I just got up with my multiple pains and weaknesses.
It is extremely hard to live like this. And you likely look better than you have ever looked because your diet is near perfect and you are doing what exercise you can. So we look to the outside world like we must have only an emotional struggle happening. That is not it at all. Of course, emotional and physical wellbeing is so tied together. Feeling seen, heard and supported when your injuries and pains are not visible does help. You are not weird at all and don't give up hope. I love Dr. Kim D'Eramo's Mind Body suggestions. She has a book online for $15 and lots of free videos on YouTube.
Oh and I forgot-I plan on being there Aug. 11! Go Team Humanity! Go Suzie!
You are so inspiring! Hope you always know I’m just a phone call or text away! Love you! 💜🤗
I know you are and I am blessed to have you in my life.
So eloquently written. You verbalize to everything that I feel but lack the vocabulary to state. I have been in a huge flare feel like time has gone backwards for me… This is totally resonates are used to be a half marathon/marathon runner. We are written off as collateral damage.
I am so sorry you are also struggling. Having your physical abilities taken away overnight after being so active is extremely hard. It's scary too, because you don't know if you will ever get it back. Sending you hugs, healing, hope and humanity. 💜